- provides relief from pain and other distressing symptoms;
- affirms life and regards dying as a normal process;
- intends neither to hasten or postpone death;
- integrates the psychological and spiritual aspects of patient care;
- offers a support system to help patients live as actively as possible until death;
- offers a support system to help the family cope during the patients illness and in their own bereavement;
- uses a team approach to address the needs of patients and their families, including bereavement counselling, if indicated;
- will enhance quality of life, and may also positively influence the course of illness;
- is applicable early in the course of illness, in conjunction with other therapies that are intended to prolong life, such as chemotherapy or radiation therapy, and includes those investigations needed to better understand and manage distressing clinical complications.
- Palliative care for children is the active total care of the child's body, mind and spirit, and also involves giving support to the family.
- It begins when illness is diagnosed, and continues regardless of whether or not a child receives treatment directed at the disease.
- Health providers must evaluate and alleviate a child's physical, psychological, and social distress.
- Effective palliative care requires a broad multidisciplinary approach that includes the family and makes use of available community resources; it can be successfully implemented even if resources are limited.
- It can be provided in tertiary care facilities, in community health centres and even in children's homes.
Definisi WHO tentang Perawatan Paliatif
- memberikan kelegaan dari rasa sakit dan gejala-gejala menyedihkan lainnya;
- menegaskan hidup dan menganggap mati sebagai proses normal;
- tidak bermaksud mempercepat atau menunda kematian;
- mengintegrasikan aspek psikologis dan spiritual dari perawatan pasien;
- menawarkan sistem pendukung untuk membantu pasien hidup seaktif mungkin hingga kematian;
- menawarkan sistem pendukung untuk membantu keluarga mengatasi selama pasien sakit dan dalam kesedihan mereka sendiri;
- menggunakan pendekatan tim untuk memenuhi kebutuhan pasien dan keluarga mereka, termasuk konseling berkabung, jika diindikasikan;
- akan meningkatkan kualitas hidup, dan juga dapat secara positif memengaruhi perjalanan penyakit;
- dapat diterapkan pada awal perjalanan penyakit, bersamaan dengan terapi lain yang dimaksudkan untuk memperpanjang hidup, seperti kemoterapi atau terapi radiasi, dan mencakup penyelidikan yang diperlukan untuk lebih memahami dan mengelola komplikasi klinis yang menyusahkan.
- Perawatan paliatif untuk anak-anak adalah perawatan total aktif tubuh, pikiran dan jiwa anak, dan juga melibatkan memberikan dukungan kepada keluarga.
- Ini dimulai ketika penyakit didiagnosis, dan berlanjut terlepas dari apakah seorang anak menerima perawatan yang diarahkan pada penyakit tersebut atau tidak.
- Penyedia layanan kesehatan harus mengevaluasi dan mengurangi tekanan fisik, psikologis, dan sosial anak.
- Perawatan paliatif yang efektif membutuhkan pendekatan multidisiplin luas yang mencakup keluarga dan memanfaatkan sumber daya masyarakat yang tersedia; itu dapat berhasil diimplementasikan bahkan jika sumber daya terbatas.
- Ini dapat disediakan di fasilitas perawatan tersier, di pusat kesehatan masyarakat dan bahkan di rumah anak-anak.
WHO Definition of Palliative Carehttps://www.who.int/hiv/topics/palliative/PalliativeCare/en/ https://www.who.int/cancer/palliative/definition/en/
Perawatan paliatif tidak bermaksud untuk mempercepat atau menunda kematian.
PALLIATIVE CARE DEFINITIONS
In 2011, CAPC did market research
to develop a definition of palliative care
based on the understanding
of the public and of physicians.
Consumer Definitions
- Center to Advance Palliative Care (CAPC)
Palliative care is specialized health care
for people living with a serious illness.
This type of care is focused
on providing relief
from the symptoms and stress of an illness,
and it is based on need,
not prognosis.
The goal is to improve quality of life
for both the patient and the family.
Palliative care is provided
by a specially trained team
of physicians, nurses, and other specialists
who work together with a patient’s other doctors
to provide an extra layer of support.
It is appropriate
at any age and at any stage
in a serious illness,
and it can be provided along
with curative treatment.